Sunday, November 15, 2009

Lincoln's medical issues

Mainly to have this as a record I can look back to, I'm going to list all the complications Lincoln has been having since birth.

Day 1...Nov. 9th, 2009:

Lincoln was born at 6:05 pm and immediately rushed to the NICU to be evaluated and taken care of. He was put on 100% oxygen. The main things they found were that he had some sort of an infection, he was having problems with his blood pressure, and also having problems with his heart contracting at a proper pressure.

Day 2...Nov. 10th, 2009:

His oxygen level had been taken down to 30% and they found he was doing well with his lungs. They were able to stabilize his blood pressure. They also noticed that his heart was now contracting properly. They found the duct in his heart, which all fetus' have and should close at birth, had not closed. He had become very swollen. The swelling and infection was preventing this duct to close. It is VERY crucial that this duct close. If the duct would not close on its own or without three doses of ibuprofen every 24 hours they would have to opt for surgery to close it. They had given him blood pressure medication the previous day and were seeing it was now stabilizing.

Day 3....Nov. 11th, 2009:

They found he had a brain bleed which was diagnosed as a grade 1 (grade 1 being the least concerning). This is common in premature babies, but as long as it's not significant bleeding it should be fine. They had been evaluating the severity of it through out the day. They had given him some ibuprofen to help with the process of the duct closing in his heart. We were also informed that the infection Lincoln had contracted came as a result of bacteria entering the womb after my water had broken. He may have swallowed the bacteria that was in the amniotic fluid...the small amount that was in there...and/or it may have gotten into the placenta.

Day 4....Nov. 12th, 2009:

One of the partner neonatoligists approached us as we were visiting Lincoln. He had gone over a second x-ray of Lincoln's brain and had expressed that he was very very concerned. We were previously told the brain bleed was a grade 1 and they were now looking at a grade 3. There's a good possibility that the administration of the ibuprofen increased the bleeding in his brain. The swelling had gone down a bit and the duct in his heart had still not closed. At this point they were really stuck between a rock and a hard spot. They were hesitant to give him more ibuprofen since they were thinking that was the culprit in the increase of his brain bleed. They also weren't able to do the surgery because he was not stable enough. WE NEEDED THE DUCT IN HIS HEART TO BE CLOSED!!!

Day 5....Nov. 13th, 2009:

We woke up with the news that a miracle had taken place. They had done another ultrasound on his heart and found that the duct had closed overnight!!! That was a huge concern and now we could all let out a big sigh of relief....at least for a few minutes. The doctors had noticed he had a few suspicious movements that could be indicative of seizures. The seizures would be a result of blood on his brain which we were already aware of. They were giving him medication to prevent the seizures and just keeping an eye of the seizure activity.

Day 6...Nov. 14th, 2009:

The news of the possibility of the severity of his brain bleed was once again emphasized. There is a little discrepency as to how severe the brain bleed is. Dr. Minton and Dr. Miner seem to have differing opinions. Dr. Miner has diagnosed it as a grade 3 and more severe bleed. Dr. Minton has diagnosed it as a severe grade 1 bleed. They have opted to send the x-ray up to the radiologist at Primary Children's to have a third set of eyes to determine what it could be. Also, they were still concerned with the combination of the brain bleed and the seizures. And he was once again having problems with his blood pressure.

Day 7...Nov. 15th, 2009:

We received a phone call from the NICU at 7:30 am. He had a rough night. At approximately 11:00 pm on Saturday, his blood pressure had dropped and they also noticed some more seizure activity. From about 11:00 pm to 3:00 am they were trying different things to stabilize him and finally got him situated.

Saturday, November 14, 2009

....WOW....

The title pretty much sums up this last week and to be honest it is quite of an understatement. The morning of November 9th looked to be one of our "regular" routined days. I had a specialist appointment with Dr. Schemmer, who would do another in depth ultrasound to tell me of the progress of the baby. Everything went well. Right after my appointment with Dr. Schemmer I had one of my two non-stress tests that were scheduled for that week. Everything with that also went well. I went home to continue the rest of my day just like any other. Savana was ready for school and we were just waiting for her ride. I started feeling a little off, a bit crampy and thought if I just layed still it would subside. Well, it didn't. It continued and started getting a little more intense. I called Scott a few times to keep him updated on what was going on. This all started at about 1:00 in the afternoon and by 3:00 I called Scott and told him I was pretty sure they were contractions and I was having them about every three minutes. When I called him that time he was already on his way home from Park City. My mother in law brought the kids home from school at about 3:30 and Scott got home at 3:45.

We arrived at the hospital, they got me into a room and checked me. I was dilated to a 3 and 80% effaced. They put a call into my dr. and they decided at the moment they would just try to stop my labor. They gave me a shot and the contractions subsided for a bit. Dr. Berry put a call in a few minutes later and had decided to proceed with a c-section. The baby was breech...and not just feet first breech.....bum first breech. I was extremely nervous at this point. Not only was this the first time having a c-section, but the c-section was going to be a cascade of events. Some would be exciting but many would be VERY VERY scary. The first thought I had was when he was born would he take his first breath? That was one of the main fears we've had this whole time with my water having been broken for ten weeks. The second thought I had was if he made it passed his first breath what struggles would we have after that?? I knew there would be many.

As they were performing the operation I couldn't help but listen to my heart rate that they were monitoring. I could hear it in rhythm with the pounding in my chest. This wasn't at all an emergency and they seemed to be confident and calm. They talked me through it and then it was the moment of truth.....they held my baby boy up over the curtain to have a peek. Right then he let out two little squeaky cry's. I no longer could hold my tears of joy back and the flood gates had opened. He was beautiful...teeny, but beautiful. He had quite a bit of hair. The sad thing is because all of it was so rushed we didn't capture it on video. I didn't even have a "hospital bag" prepared. They rushed him to the NICU right after that and got him situated. The doctors took care of me and then got me in my room to recover. After I was fine they wheeled me in my bed to see my baby lying in an incubator with all kinds of wires and tubes hooked up to him. I could barely see him through all my tears. His final weight and height:
2 lbs 5 oz's 13.5 inches long. For as little as he was this was a relief to me. He seemed to be a "decent" size. We named him Lincoln.
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Right away he was put on the ventilator at 100% oxygen which meant he needed complete assistance in breathing. The next few days would be just the beginning of an extreme variation of emotions. One day we would be completely happy thinking things were going our way and it took but a few minutes and a few words from a doctor to break us down to the lowest point a human could possibly be.

Through out my stay I found myself just wanting to be pregnant still and wanting all of the events at the hospital to have never happened. At another point I found myself just wanting to curl up in a ball and to have someone just wake me up when it was all over and Lincoln was ready to come home from the hospital. Through out our experience with Colten and all the ups and downs through out this whole pregnancy with Lincoln, I never felt as weak as what we were going through now. I wanted to feel and think positive and see the big picture. BUT he was here now and he was REAL he was....tangible. And I knew at any moment I could loose him.

In the picture below they've covered his eyes with his beanie hat just to make sure he doesn't have too much stimulation....his little 28 week old eyes aren't ready for this big world yet.
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I've always considered myself a pretty spiritual person, but THIS has defined another level of being spiritual for me. The outpoor of love from everyone has been intense. The outpoor and connection I've had with Scott has been intense. Knowing I have children at home and knowing this little soul who is so so fragile I then know they are depending on me, I find myself pulling it together. I know that they're looking up to me and waiting for my hand to pull them through.

As I left the hospital it was bitter sweet. Sweet in the sense that I had three little children at home that had not seen me in five days. Sweet in the sense that Lincoln would have the very best of the best taking care of him. Bitter in the sense that I just experienced...again....the joys of being pregnant and delivering a little miracle, but coming home empty handed. This time being empty handed is temporary and I am SO grateful I live only 5 minutes from the hospital.

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The NICU generally keeps premature babies until the baby's due date, that would put us at February 2nd. I'm thinking of starting a separate blog for Lincoln to keep everyone updated and informed on his progress. When it's put together I'll make sure to let everyone know. In the meantime I have A LOT of healing to do.

This is going to be an ongoing battle and it will also be what they describe it as a "roller coaster." Keep us in your prayers!

Sunday, November 1, 2009

Happy Birthday ....#8

Today is your 8th birthday!!
With each year you grow bigger and bigger.
But you also grow funner too!

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I'm so lucky to be your mom.
You are obsessed with sports.
It's a good thing you're coordinated :)
We've watched you grow from being a "ball-hog" to a great team player.
You love to sit with your dad and watch football or basketball.
You know all the calls and can name it before they announce it.
While Mommy's been on bed-rest, you've been a great help to me.
You are a great big brother and love to play with your little sister and brother.
We love you so much and hope your eighth year is one you'll always remember.

Happy Birthday Scottie!

Halloween OH nine

We LOVE Halloween....

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and who wouldn't....

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We get to play dress-up......

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.....and eat LOADS of candy!!!

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Thursday, October 29, 2009

A year we'd like to forget

Warning: this is a pretty long post. I wanted to give an in depth exlpanation of what we've been experiencing and I also wanted to make sure I had a record of the events that have taken place with our little baby boy up to date. BUT please read :)

May 13th I took a pregnancy test and had a positive result. I couldn't believe I was actually pregnant especially with everything that we went through with Colten. I found myself happy, but extremely nervous and anxious.

Everything was going really well. Naturally, with all my pregnancies and an exception of Colten, I am very lucky. I don't get any kind of morning sickness, maybe occasional fatigue, but other than that I have it REAL easy. I found out that I had been exposed to the Human Parvo Virus, also known as fifth disease. This virus isn't normally harmful UNLESS you are pregnant. We had a few suspicions that I could have contracted it, but didn't know for sure until I took a blood test and the results came back positive. I was extremely concerned. The day the results came back was July 3rd. That night I had contractions, heavy bleeding, and was convinced I was having a miscarriage (that being one of the side-effects of the virus if pregnant). I couldn't believe I was going through this again. I was so petrified that we would be experiencing another loss. We rushed to the E.R. to at least have a peace of mind whether or not the baby was ok. At the time I was nine weeks along and knew nothing could be done and if it was the worst case scenario we would have to let nature take its course.

At the E.R. they did an ultrasound and found out the baby was completely fine. The baby looked great and as far as they could see, there really was no explanation for the bleeding and they released me with the advice to just take it easy. I had a regular prenatal check-up scheduled and was referred to a specialist. The consequences for the baby of the virus could be anemia and also problems within the brain. We had gone to the specialist to follow up on any of the possibilities. From what he said everything with the virus was looking ok. BUT upon looking into things in depth he had found I had a HUGE blood clot in my uterus which would explain the bleeding.

He wasn't very optimistic. He was now more concerned about the blood clot over the virus. I guess it's very common to have a blood clot while being pregnant, but they normally don't get so big and tend to take care of themselves. Mine took up over fifty percent of the space in my uterus. I found myself crying at the end of the appointment, convinced that the result of what was supposed to be a happy event, was just going to be another heartache. We continued to set our future appointments as if my pregnancy was going to continue, and it did. I made it to my next prenatal and specialist appointments.

Everything started looking good and the blood clot looked to be shrinking. We were ecstatic thinking things could be taking a turn for the best. About two weeks went by after my specialist appointment. I was eighteen weeks along and I woke up in the early morning to what I thought was bleeding again. It wasn't bleeding this time and I was a bit confused. I made a couple trips to the bathroom. The third trip is when things got real scary. I had a left a trail that went all the way across my bathroom and ended in a BIG puddle in front of the toilet. I yelled for Scott and told him we needed to get to the hospital right away because I believed my water had just broke.
We ran over to labor and delivery at the hospital where they did a number of tests along with an ultrasound. The baby looked great. They did a test to confirm as to whether or not it was amniotic fluid. The test results came back negative. We were told it was probably just a build up of mucous. I was really confused because I had never heard of that before, but was relieved everything was fine.

Again, two weeks later, I went to a check up with the specialist. Immediately the ultrasound picture looked different to me. The technician asked me if I had been leaking amniotic fluid. All the fears and concerns I thought could be pushed away and forgotten came rushing back. I told her that in fact I had an incident and made a trip to the L&D two weeks previous. The specialist came in and informed me that I had virtually no amniotic fluid and it had probably been a result of my water breaking. The cause of my water breaking was from the blood clot. Again, here we were facing a very grim outlook.

So, what could result from this would be: going into labor at any point, contracting an infection in my uterus as the result of no amniotic fluid as to which they would have to deliver the baby no matter the gestation, the baby passing as a result of cord compression, and if the baby would make it to viability the next concern would be lung development. With no amniotic fluid it is extremely hard for the baby's lungs to develop, amniotic fluid is a key component. At 24 weeks is when the baby's lungs start developing "branches" of the respiratory "tree" as well as cells that produce surfactant, a substance that will help the air sacs inflate once the baby hits the outside world.

My doctor informed me that if we make it to 34 weeks we would deliver the baby. There is a chance though that when he is born he wouldn't make it because of pulmonary hypoplasia (improper lung development). All we could do is hope for the best and take it one day at a time. I had previously been on partial bed rest then had contractions and bleeding. After that my doctor ordered full time bed rest.
I'm now 26 weeks along. The doctors are surprised each time I come back in and am still pregnant. The baby moves a lot and is still growing. With all of the ultrasounds they have been doing, all of his vital organs, not including his lungs, all look adequate. The lungs are something they can not see by ultrasound though. Even with a CT scan, or any other measures they would use to examine his lungs, there is no way to be able to track the development. That is something we will have to wait to find out at birth.

Professionals consider the baby viable at 24 weeks gestation. The specialist sat down with us to go over any and all options. The first option he gave us was for me to be admitted to the hospital full-time until the birth of the baby or seeing a significant drop in his heart rate multiple times. The other option would be outpatient care and go to the hospital twice a week for a non-stress test. I wanted the best for the baby, but really didn't see it being the best option for me to be in the hospital full-time. So, that's what we chose, to stay home. Immediately after my appointment with him they gave me a steroid shot which is supposed to help his lungs.

On Friday, the 16th of October, I went in for another test and when I was about to walk out the door the nurse decided to take my temperature. The thermometer read 99.8. It became a concern to them that the low-grade fever could be an onset to an infection. They decided to admit me to the hospital overnight for observation. A few hours after I had been settled into my hospital room they took my temperature again and it had decreased. They pumped me full of antibiotics and so graciously hooked me up to an I.V. My normal doctor and specialist both were out of town and as a result of that I would be communicating with the doctors on call.

The initial thoughts of me just staying overnight turned into staying until Sunday. Then from that it turned into me staying until Tuesday when my primary O.B. would be back in town. They had me all hooked up to an I.V., a monitor for the baby's heart-rate and a monitor for any contractions. The first night I was there the monitor had recorded a significant decrease in the baby's heart rate for almost three minutes straight. They watched it closely and had decided if it had taken one to two more dips they would have delivered my baby via c-section that night. The nurse came in and had me change positions. Luckily after that we had no other scares.

The worst part of my hospital stay, including all that I was bound to, was that my children could have ABSOLUTELY no access to my room because of flu season. I was devastated. As far as I could tell they were going to keep me in the hospital for the entirety of my pregnancy. I couldn't fathom the thought of not seeing my children and that in itself would have been the result of my insanity.
My husband stayed with me the first three nights while my mother stayed at our home with the children. We had devised a plan so that we could at least "see" each other, even if our view was 150 feet away(no exaggeration). The only good thing I could say about staying at the hospital was my view.


It was beautiful. The room had a north facing three pane window that looked over the valley. I could see the mountains and the hustle of the thousands of people who went about their daily lives. There also was an area with grass, fountains, benches, and statues on the hospital grounds. That is where I would stand at the window, cell phone to ear, and I.V. in tow to "see" my children. The thought of this experience still brings tears to my eyes and a tug at my heart.

I guess it was the unknown that hurt the most. The unknown of EVERYTHING. How long would I have to stay in the hospital? How long would it be until I could see my children in person again...smell their smells and hold them in my arms? After being in the hospital, for who knows how long, would the outcome of this oh-so delicate process would I FINALLY be able to hold my little newborn in my arms or be heart-broken and have to pick up the pieces again? I knew if I would stay in the hospital that I would truly go insane, but I knew I would adjust and be helping the chances of my little baby's survival.

My mother came to visit often while Scott would take over for the care of our children. They tried to do whatever they could to make me comfortable. Scott brought my laptop so I could still try to keep in touch with the "real world." He also brought magazines and upon my request, a Cold-Stone chocolate ice cream with roasted almonds in a waffle bowl. My mom had taken the children to Thanksgiving Point on Saturday where they had loads of fun. Her gift to me was a vase with flowers, a card, and a halloween sign that had a witch on it and said "Best Witches." She's always so thoughtful.

My doctor paid a visit to me on Tuesday and had an in depth conversation with me. He felt comfortable leaving it at my discretion as to whether or not I thought I should stay in the hospital. He felt that knowing us really well, having delivered 2 of my babies already, and with me being only 24.5 weeks along, he was really okay with whatever my decision would be. I chose to go home. I knew what the signs were to look for with an infection and I would continue my bi-weekly non-stress tests. There was an important lesson I learned from that hospital stay. We have to find the positive in everything. When first being on bed rest I was depressed thinking of all I was missing out on . The hospital bed gave me a new perspective and I longed for my couch.
Ultimately, I know that there are a few things I can do to make this a positive outcome and I am taking those measures. I also know that it is not in my control what my story will be. Having been through the loss of a child once before only confirms that to me over and over again. I know Heavenly Father STILL and ALWAYS has a plan for me. I REALLY don't want to lose another child, but know that He is in control and KNOWS what I can handle.
I continue my multiple doctor visits, non-stress tests and bed rest praying that all will go well. I continue to intrigue the doctors as to why I have not delivered yet and I hope to keep them guessing. Each day he stays in my tummy is another day on my side. Each Tuesday is the mark of my new week....this coming Tuesday I will be 27 weeks along. The closer and closer we inch along the more and more optimistic I become. My fingers are permanently crossed. My ULTIMATE goal is to make it to 34 weeks. If I can't make it that far I hope for 30 weeks. We'll take whatever we get, but I am now preparing myself for a baby who will possibly spend an extended period of time in the NICU.

My spirits are good and I have been just trying to take it minute by minute....enjoying each movement of the baby, relishing in the fact that I feel his hiccups or when he decides to roll over a bit. I will be keeping everyone updated on my blog of this new experience. Thanks to EVERYONE for all of your help, love and concern!

Friday, October 16, 2009

Another great prize!!

Gotta check this website out if you haven't already!!


The Savvy Photgrapher

Friday, October 9, 2009

Vote for US :)




I entered Scottie, Savana, & Luke in a GAP casting call. We would appreciate any and all support from our loved ones and friends....thanks a bunch!!

GAP casting call
^click me^